Roman Fenner is a 23-year-old originally from Richmond, Virginia. Roman has been involved with the foundation since the mid-2010s, where he volunteers for his local unite4answers event, attends educational lectures, delivers his testimony as a patient speaker, and lobbies his local and state representatives for increased funding and awareness for Chiari, Syringomyelia, EDS, and related disorders during yearly Unite@theHill events. In the summer of 2020, Roman began leading the virtual High School/College support group, which has met monthly since.
Roman graduated with a Bachelor of Science from Davidson College in May 2022, where he double majored in Biology and Music. He has spent the past year performing vaccine immunology research at Duke University and is excited to begin pursuing his MD/PhD at the Medical University of South Carolina in the summer of 2023. Roman’s goal is to become a physician-scientist, studying and treating the neurological comorbidities of Ehlers-Danlos syndrome.
